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When a Child (with diabetes) Can't Remember

June 09, 2008

In the fall of 1985, a very scary thing happened shortly after I was diagnosed with type 1 diabetes. One morning I woke up and I couldn't remember things I would normally remember. I couldn't remember the name of my neighbor's dog. I had a fanatical love for Cookie. Of course I would remember Cookie! A diabetic child would never forget such a sweet name for such an adorable dog! One more thing -- I had a pounding headache.

My mom brought me to the hospital, where my endocrinologist met us. They ran test after test and nary could an expert explain my memory loss. They confirmed I was experiencing amnesia, which turned out to be temporary because I was back to normal the next day.How many people have experienced this same phenomenon? I surmised that this was my body reacting to the Humulin insulin I had started only a month or so before. The insulin must have been competing with my body's own attempts to generate insulin thus thwarting my blood sugar down into a dangerous hypoglycemic state. A study published in 1991 shows that hypoglycemia results in a lesion in the left temporal lobe. I have one of those lesions now, but it wasn't discovered until 2000. Oh yeah - and my peduncle is perfectly asymmetric. What does that mean anyway? Why weren't doctors informed of this potential reaction to insulin in 1985? A study 6 years later is a few years too late. And how many more newly diagnosed insulin-dependent diabetics experience the same thing? My parents were scared out of their mind and nobody (including specialists) had any idea what to do with me.

Comments (2)

slr said:
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I was diagnosed as a Type one in 1989. I started on Humulin and Regular right away. I was a patient at Joslin in Boston by 1990. It was only in early 2000s that I got ...

I was diagnosed as a Type one in 1989. I started on Humulin and Regular right away. I was a patient at Joslin in Boston by 1990. It was only in early 2000s that I got off the Humulin and onto Levemir and Novalog (sometimes via pump.) I have A LOT of memory problems. I was always somewhat of an idiot savant remembering birthdays and phone numbers. I can't keep them straight anymore. I struggle to find words a lot and often start driving and forget where I am going- to the point my son is teasing me about it. What can you test to find out if you have issues with the memory as a result of using Humulin?

view less October 14, 2008
lantusman said:
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holy s*&t, i just told my friend who is a girl that. 3x in my life,ive lost complete memory,had no recolection of who i was,where i have lived,nothing existed before.i was eatin...

holy s*&t, i just told my friend who is a girl that. 3x in my life,ive lost complete memory,had no recolection of who i was,where i have lived,nothing existed before.i was eating with decent sugar and said,i wouldnt have a clue where i live or who you peopl,e are but i know your faces.im kinda a nut so they never thought a thing of it.i was using humulin and humalog then.i actually liked it i was very peaceful and complacent.then it happened about a year later and i thought here it comes again.and it did.i just sat for about 40 minutes and a friend came by,and i started to remember again.i checked my sugar that time and i was 7.0.so my body was kickin sugar to me.i dont think it was related to low sugar though.but i never know,hhhmmm.my dr says my sugars are to low,my readings from 9 mnths were 5.4 5.6 5,2 a1cs.he said if my sugar wasnt at 11 1 time at my sugar test he wouldnt believe i hadf diabetes.my lobe is screwed hahaha.i have lost all warning signs,i was gonna go for a walk and my friend says check your sugar i say im fine so i check it and it was 1.0.im usually fine there.im not scared to go in a coma,ive been 2 days in a field with 60 units in myself with no food i come around all the time.i shouldnt be tellin you this but,its my way and i do great.im sick of typing 1 finger madness,i need a break.by the way i was a proffesional fighter in a cage like the ufc but worse,i was in extreme fighting.i fought 3 rounds in low blood sugar 2003 ,it was 1.6 when the dr came in,i was barfing orange juice,so i got a little worried,i stood up never got knocked out and the other person was banged up good.im makin myself laugh.thats enough.the memory loss was before i was a fighter.

view less June 09, 2008