A friend runs an advocacy group for young people fighting cancer called I'm2YoungForThis.  I think of it as a really different, challenging take on the cancer world and a lot of the commercialism that comes with it. He's done some amazing YouTube videos in support of his group's cause and message. (I'll add some in a future post.)  He…[more]

I know that many folks on Trusera are parents of children or caregivers of people managing conditions for which there is no known cure. I heard an NPR story this morning about some new research into Fragile X and the potential for treatment for autism. That work came out of a couple's inspiration from the movie Lorenzo's Oil. I'v…[more]

NPR did a story this morning about the research work of Fraxa around drugs to treat autism. It's a powerful story about a couple's journey to find a treatment for their son.  The story also talks about the research their foundation, FRAXA, has done around FragileX.  They are not promising a miracle cure, but th…[more]

I ran across a great article in the Sunday New York Times this week on taking vacations with children with autism. (Yes, it takes me all week to read through the Sunday paper.)  It talks about services available for parents taking vacations with children with Autism.  Great references on cruises and other resources.

I found this interesting video on symptoms, diagnosis and screening of autism.  Good, practical stories from parents and health experts.  It looks like the video was created by Easter Seals.

Temple Grandin is an author,  person with autism, and a very cogent speaker about autism.  This is a video of a lecture she gave at Colorado State University.  I find her a really compelling interpreter of the experience of autism.  Worth checking out!

I ran across this story about travelling with a child with autism this morning that I thought was inspiring.  It's about a family helping a child with autism conquer his fear of flying.  Here's a bit of what they went through in preparation: Expecting the worse, we had come well prepared.  We made cards about Josh to pa…[more]

Randy Pausch has become something of a sensation lately, talking about dying with pancreatic cancer.    He was highlighted in the Sunday New York Times today.  I added the link below!Cheering Section Dying of Cancer, but Full of Life Lessons By VINCENT M. MALLOZZI Published: May 11, 2008 Randy Pausch, who has p…[more]

I'd love your thoughts on this question. It's something I think about a lot and I'd love the input of "friends who've been there." What's the best way to support couples that are struggling with fertility? What, if anything, should I be especially sensitive to?Here's the context: I'm a parent of an adorabl…[more]

Why Care? If you're a parent, a pregnant woman, or buy gifts for children, you should know about phthalates, Bisphenol-A, and mounting concern about the health effects of common plastics. The concerns about toxics in plastic (excerpted from a great article in USA Today) include health issues related: Early puberty Obesit…[more]